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Category: Cystic Fibrosis

A Parents’ Guide to Managing Cystic Fibrosis in Children

Cystic fibrosis treatment can be a lot on little bodies. Here’s what parents should know about managing their child’s symptoms on a long term...

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When to Consider a Feeding Tube for Cystic Fibrosis Weight Loss

Gaining weight on a feeding tube can help people with cystic fibrosis (CF). Learn why CF causes weight loss, available options, side effects, and...

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What CF Patients Should Know About Pulmonary Exacerbations (PExs)

Pulmonary exacerbation (PEx) in CF patients refers to lung inflammation flare-ups that are commonly treated with antibiotics. Here’s what to...

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Kalydeco (Ivacaftor) - Oral

What Is Kalydeco? Kalydeco (ivacaftor) is a prescription medication used to treat a specific type of cystic fibrosis (CF), a genetic disease...

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Nutrition Considerations With Cystic Fibrosis

Cystic fibrosis patients are often at risk for malnutrition. Learn why this is and how to get extra calories in a healthy way. People with cystic...

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What Is Cystic Fibrosis–Related Arthritis (CFRA)?

Cystic fibrosis–related arthritis (CFRA) is a complication of cystic fibrosis (CF). Symptoms include joint pain, inflammation, and limited...

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What Is Cystic Fibrosis-Related Diabetes (CFRD)?

Cystic fibrosis–related diabetes (CFRD) is a complication of cystic fibrosis that occurs when the pancreas becomes too damaged to make enough...

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Lung Transplantation for Cystic Fibrosis

As cystic fibrosis (CF) progresses, lung transplant surgery may be considered to improve quality of life and help manage symptoms. Learn more about...

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Cystic Fibrosis Carrier Testing

How common is it to be a cystic fibrosis carrier? Will being a carrier affect pregnancy? If you’re a carrier, here are a few facts you should know....

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Cystic Fibrosis(CF): Life Expectancy

In recent years, life expectancy with cystic fibrosis has improved. Medical research and advances in treatment have made a long, healthy life with...

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Living With Cystic Fibrosis

Cystic fibrosis presents unique challenges in each stage of life. With proper management, people with CF can overcome obstacles and live quality...

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Treating Cystic Fibrosis

While there is no cure for cystic fibrosis, proper treatment will allow you to get symptoms under control, prevent complications, and get back to...

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Cystic Fibrosis Symptoms and Diagnosis

The earlier cystic fibrosis is diagnosed, the better. Learn about symptoms, which may affect many parts of the body besides the lungs, and diagnostic...

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Bacterial Colonization in Cystic Fibrosis

Learn about colonization, and what it means to people with cystic fibrosis, including pathogens that colonize the lungs like Pseudomonas. You may...

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Tobi (Tobramycin Inhalation Solution) Overview

Tobi is an antibiotic used to treat Pseudomonas aeruginosa, a bacteria that grows in the lungs of many people with cystic fibrosis. Learn more. Tobi...

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Keeping Your House Clean for Cystic Fibrosis

You want your home to be a clean, safe environment for your child with cystic fibrosis. Find out more about how much cleaning you need to do. You...

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What to Eat When You Have Cystic Fibrosis

A cystic fibrosis diet aims to compensate for the body’s absorption and metabolism problems seen in CF. Reviewed by a board-certified physician. A...

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Cystic Fibrosis (CF)

Cystic fibrosis is an inherited, life-threatening disorder that damages the lungs and digestive tract. Reviewed by a board-certified pulmonologist.

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Pseudomonas Aeruginosa in Cystic Fibrosis Patients

Learn why the Pseudomonas aeruginosa infection should be taken very seriously by people with cystic fibrosis. About 60% of people with cystic...

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Burkholderia Cepacia and Cystic Fibrosis

Burkholderia cepacia is a rare but life-threatening complication of cystic fibrosis (CF), and one that often strikes fear in people with CF....

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Important Feeding Tube Care Tips

Adjusting to a feeding tube can take time. Here are some tips that will help you take care of your feeding tube in no time. Many people...

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Cystic Fibrosis and the Term 65 Roses

The term 65 Roses has helped children understand cystic fibrosis for decades. Learn more about the story behind the now-trademarked nickname. The...

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Physiology of How Breathing Works

In order to fully understand how cystic fibrosis causes breathing problems, it is important to understand how breathing normally works. The first...

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Mixing Second-Hand Smoke and Cystic Fibrosis

You know smoking is bad for you, but how does second-hand smoke affect those with cystic fibrosis? How much smoke exposure is dangerous? It’s no...

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Causes of Cystic Fibrosis

Cystic fibrosis is an inherited, fatal disease caused by a genetic flaw that leads to the buildup of mucus in the lungs and other vital organs....

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Wish-Granting Organizations for Sick People

Wish-granting organizations have funds to arrange special trips or other special moments for children and adults with life-threatening diseases. Many...

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Living With Cystic Fibrosis

Living with cystic fibrosis can be challenging, but there are ways to remain healthy so that you can stay active, pursue a career, and even plan a...

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Airway Clearance Vest Systems for Cystic Fibrosis

Airway clearance vests are an increasingly popular choice of therapy among people with cystic fibrosis. Learn how they work. Many people with cystic...

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